"Your child has a lysosomal disease." Such a statement refers to most parents, like a bomb. It's usually at that time that a psychologist of the hospital will notify the parents. Of course you are free to refuse his or her help, but it would be a shame to make this option not to use. Especially if you take into account the different steps you have to come.
Of the shock to the acceptance of the diagnosis of lysosomal diseases
- Phase 1: the shock
The shock caused by the diagnosis is similar to what one feels at the loss of a loved one. The parents hear medical decisions, but skip the details and explanations do not. Overwhelmed by emotion, they are as it were surrounded by a dense fog.
- Phase 2: denial, resistance
The parents accept the diagnosis. They often consult another doctor, because they are convinced that the first was mistaken. Sometimes they are even angry with the doctors.
- Phase 3: the depression
The parents were desolate and even desperate. During this time they are withdrawn, they mourn the child whom she had dreamed of (a 'normal' child of course) and the future plans for him they had anticipated.
- Phase 4: the return to equilibrium
The above-described intense feelings gradually fade. The parents are again more confident and above all confidence in their ability to raise the child.
- Stage 5: the reorganization of daily life
In this phase, the parents come to terms with the news, even news that they have often not accepted. Life resumes its normal course and parents adjust their lives to meet the needs of the child. The parents perspective what hit them and begin to think back to the future.
The importance of psychological support
The duration of the phases varies from person to person. Psychological support helps to have these successive periods easier and sometimes faster to get through. A psychologist can help you include your feelings to express. Perhaps you experience a love-hate feelings toward your child. The therapist will then try to get you from your guilt to help. Such a feeling is very common among parents with these problems. The psychologist will also demonstrate a positive future is possible, despite the lysosomal disease that affects the child.
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